Read this comprehensive guide to dementia home care, and learn how Amazing Home Care can make caring for your loved one rewarding and manageable
Dementia changes the dynamics of a family. Capable parents become the recipients of care, more so as the condition progresses.
Caring for someone with dementia in their home can be a rewarding experience that brings you and your loved one closer together. But dementia home care also has its challenges. A proactive plan of care and professional support from the caregivers at Amazing Home Care make all the difference.
Dementia is a progressive cognitive decline that makes day-to-day living increasingly difficult. It most often affects older adults. But people under 65 can also develop certain forms of dementia.
Common dementia symptoms include:
Each person with dementia is unique, and symptoms often look very different from one person to another. Caregivers need to learn their loved ones’ needs and provide a safe environment.
Dementia is mental, physical, and emotional. The home must address those domains to support patients’ health and well-being.
People with dementia often struggle to navigate the space around them. The home environment must always be safe and secure, and home modifications are often necessary. Typical modifications and safety features include:
Safety devices and monitors are an essential part of any long-term care plan. They keep people with dementia safe while allowing caregivers more freedom.
People with dementia have increasing difficulty planning and performing tasks. Something as seemingly minor as getting dressed before breakfast can be overwhelming, especially if the person usually completes those tasks in reverse order.
A daily routine reduces stress for everyone involved. People with dementia feel less agitated and can often do more for themselves. Things go more smoothly at home, and the caregiver’s job becomes slightly easier.
The best method for creating a routine is to watch what the person does naturally. Learn what they do when they wake up and in what order. Have their preferred foods, beverages, and clothing available so they don’t have to search.
A sense of control is essential to the daily living routine. Loss of independence is frustrating for anyone, and someone with dementia may not know why things are “suddenly different.” Encourage them to do as much for themselves as possible in their daily routines.
People with dementia gradually lose their ability to communicate effectively. They struggle to construct sentences and understand what people are saying to them. They might lose familiar words, speak illogically, or use the wrong words for things — “car” for “coffee mug,” for example.
Avoid correcting or disagreeing with the person. Their thoughts and beliefs are real to them, even if they’re factually incorrect. Adopt a “yes, and” attitude: Go along with what they say, then redirect them to something else. For example:
“I have to go pick my kids up from school!”
“Yes, we’ll go get them. Can we go get a sweater/water/shoes first?”
Ask questions and express interest in their thoughts, needs, and wants. Set your questions up for simple replies to make responding easier. For example, instead of asking, “What do you want to do?” ask, “Do you want to watch a game show?”
People with dementia are typically aware that they’re struggling to communicate, and the experience is frustrating. Patience is key. Give the person extra time to express their thoughts or process what they’re hearing. If they seem frustrated, offer verbal reassurance: “Take your time. It’s okay.”
Remember that communicating is mentally taxing for your loved one. Reduce their cognitive load by simplifying your conversations. Use shorter sentences and simpler words, focusing on one idea at a time.
Watch carefully for nonverbal cues. Someone may not be able to tell you they want to sit outside, but a longing look at the back patio speaks volumes. If you learn what their body does when they’re happy, upset, frustrated, or wanting something, you can anticipate and keep everyone happier.
Most importantly, don’t talk down to the person or treat them like a child. Use the same tone as you’d use with any other adult and discuss their interests. Underneath the dementia, they’re still the same person.
People with dementia still need to engage with the world around them. Studies have shown that participating in mentally and socially stimulating activities may help to preserve memory and cognitive function. This can also slow disease progression.
Caregivers can help by offering a variety of activities to engage the mind, emotions, and body.
Caregivers can also encourage their loved ones to participate in favorite hobbies from their pre-dementia days. Even seemingly complicated activities such as knitting and crocheting can still be possible thanks to muscle memory.
Hobby groups are even more beneficial because they add a social and emotional element. One knitting circle in Norway made it into a scholarly journal because it helped women with dementia to think, plan, and problem-solve. The circle also reinforced the women’s sense of social belonging and reminded them of their roles in the community.
Any stimulating activity can be beneficial. But participants should never feel anxious or forced to participate. If someone with dementia is frustrated with losing an ability, the caregiver should guide them to another activity.
People with dementia often behave very differently than they used to. One culprit is brain cell loss, which impacts a person’s ability to control impulses and emotions.
Confusion and disorientation can make emotions even harder to manage. Loss of processing ability makes busy environments more challenging, especially when the person can’t articulate or even understand those feelings.
Physical pain can also make a confused person “act out.” They can’t tell their caregiver that something hurts or they don’t feel well, and when the pain makes them irritable, they can’t explain why.
Sudden behavior changes should prompt a call to the person’s healthcare provider. Pain or a new medication may be causing such an abrupt difference.
If there’s no physical cause, the next step is to look for patterns. For example, the person might become agitated whenever the phone rings or angry when the caregiver suggests a shower. Working around these triggers can help everyone stay calm.
Regardless of the cause, the caregiver’s first job is to keep the person safe and calm. Redirect whenever possible, and never contradict.
Behavior changes often get worse as dementia progresses. If they begin to lash out physically or act in a way that puts themselves or anyone else at risk, don’t hesitate to seek help.
Dementia home care can be rewarding and create a bond unlike any other, but it can also be frustrating and stressful. At Amazing Home Care, we believe no one should have to do this critical work alone.
We offer caregiving services and support for family caregivers so you can keep your loved one at home as long as possible.
All Amazing Home Care aides are fully certified and receive in-depth training to provide quality in-home care. We will match you with the right person or people to offer the help you need, from bathing and grooming to light housekeeping and meal preparation.
We’re also here to help you provide compassionate care for your loved one. If they live in New York and have Medicaid, we’ll set you up as a caregiver through the Consumer Directed Personal Assistance Program (CDPAP), which compensates you for the care you provide.
Even the most devoted caregiver needs a break every so often. Amazing Home Care can provide you with 24/7 live-in care from a caregiver trained in dementia support.
Amazing Home Care creates each personal care plan to suit the individual’s needs.
We know that dementia care is a journey of change, and what worked yesterday may not work today. Our registered nurses (RNs) closely monitor each patient and adapt their care plans when needed. We communicate regularly with families and ensure everyone’s on board.
People with dementia need specialized care. Family caregivers play irreplaceable roles, but they need help and support.
Amazing Home Care is here to be that support. Contact us to learn more about signing up for services, from in-home care to CDPAP fiscal support. Together, we’ll be the village your loved one needs.
Amazing Home Care is part of the Centers Health Care network, the leader in post acute care in the Northeast.
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